On the occasion of International Women's Day, the European Federation of Neurological Associations (EFNA) is conducting a survey on "Assessing the diagnosis and care pathways of people with neurological disorders in Europe".
Despite the higher prevalence rate in women than in men of many neurological disorders (e.g. multiple sclerosis, migraine, Alzheimer's disease), gender stereotypes can have a negative impact, leading to under-diagnosis, misdiagnosis and delayed treatment. Furthermore, while women experience neurological disorders differently to men (symptomatic profile, pace of progression and effectiveness of medication), women are often excluded from research.
In addition to the experience of the patient, the majority of informal caregiving roles are occupied by women who are also burdened by the gender divide.
This survey has been developed with the aim of identifying, reporting and beginning to address the varied challenges facing all affected by neurological conditions, either as patients or caregivers, from diagnosis to care pathway. Data generated through this survey can be used to address the unmet needs and challenges facing all affected by neurological conditions.
The survey is open to anyone over the age of 18 who is living with a neurological disorder, or who is carer to someone living with a neurological disorder, that resides in Europe. It is available in 8 languages- English, French, German, Italian, Spanish, Portuguese, Polish and Romanian.
The survey can be accessed at https://www.surveymonkey.com/r/JQW27L2
Deadline for completion of the survey is Tuesday, April 19th.